Wednesday, October 14, 2026

12:05 PM - 12:25 PM

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Overview

Dr. Jim Robblee, Chair of Ethics, University of Ottawa Heart Institute

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Details

Key Questions to Address: • Consent & Privacy: Do we need individual patient consent for quality registries? • How do we navigate varying provincial privacy legislation? • Data Ownership: Who owns the data? Individual centres or the collective? • Data Access: Policy on data access for research vs. quality improvement? • How do we handle requests from industry, government, media? • Transparency: Should centre-specific outcomes be public? To members only? Anonymous? • How do we address outliers ethically and supportively?