Presentations on Demand
| Monday, April 20, 2026 |
| 12:00 AM - 12:00 PM |
| Virtual Presentations |
Details
Presentations on Demand are pre-recorded 20-minute sessions that attendees can watch at their convenience. These presentations are available as on-demand bonus content through the conference app and will also be featured on an onsite art-style display. Presenters will be onsite during conference breaks and facilitated poster sessions, giving participants the opportunity to connect, ask questions and continue the conversation in person.
Learning Objectives: Critically reflect on how viewing artistic and scholarly works influences their understanding of patient, clinician, and community identities.
Speaker
Mr. Yousef Al-Nahdy
Undergraduate Researcher
Independent
a relational examination of mental health in canada's swahili diaspora
Abstract
Inspired by the diverse range of identity and positionality that those occupying diasporic groups hold. This research utilizes a narrative approach to investigate the experiences and views of mental illness within Canada's East African (Swahili) community. This niche population is known for its cultural diversity, carries complex views on mental health, which are disjunctive from those within the modern Canadian systems of care. Through an autoethnographic narrative approach, my lived experience in facing mental illness illuminates crucial tensions which prevail among members of the diaspora. Semi-structured interviews conducted with family members provided a lens to reformulate lived events in accordance with knowledge of Swahili practice. Utilizing an approach driven by relational ethics of care, a focus is placed on interpersonal experiences, illustrating the complex nature of the perspectives which surround and shape the individual. In engaging with the narrative, readers are prompted to critically reflect on the social production of care within the layered diasporic positionality. In employing the relational ethics of care, a proposed direction for practice emerges that values both the individual and the plural simultaneously.
Biography
My name is Yousef Al-Nahdy, I am a recent graduate from the University of Toronto, majoring in Health Policy and minoring in Health Humanities. During my undergraduate I conducted research exploring the ways that identities shape the mental health of the Swahili diaspora group in Canada. The culmination of the research led to the creation of a relational resource, which aims to address the complex relation between competing forms of identity. I hope to research this topic at the post-graduate level in order to further explore the ways that learnings can be applied to the broader Canadian context.
COI Disclosure: I do not have an affiliation (financial or otherwise) with any for-profit or not-for-profit organizations
COI Disclosure: I do not have an affiliation (financial or otherwise) with any for-profit or not-for-profit organizations
Dr. Erin Cameron
Nosm University
Situating identities in socially accountable research networks: A parallaxic approach (118)
Ms. Téa Christopoulos
PhD Candidate
Faculty of Kinesiology and Physical Education, University Of Toronto
Complex invisible disability: A narrative ethnography of the classroom
Abstract
Background/Purpose: The clinical care of invisible disabilities, such as chronic pain, is associated with medical uncertainty and unsatisfactory doctor-patient relationships and health outcomes. Although managing uncertainty is a key clinical competency, there is a paucity of literature that explicates its teaching in the context of invisible disability. This study aims to better understand how students and their instructors narrate their experiences teaching and being taught how to diagnose, treat, and care for medically uncertain and complex invisible disabilities.
Methods: A narrative ethnographic approach was adopted. Five ethnographic observations were conducted for an 11-week, second-year undergraduate medical school course focused on caring for vulnerable patient populations with complex presentations. Twenty second year and third-year students and three course instructors (n=23) participated in semi-structured interviews which were partially and iteratively guided by preceding ethnographic observations and a feminist bioethical lens.
Results: Data are currently being analyzed using a critical narrative analysis (Souto-Manning, 2014). Early findings suggest that invisible disability is not explicitly taught as a concept in medical curricula. Students provide various conceptualizations for invisible disability and medical uncertainty and narrate their educational experiences with curiosity, empathy, and an openness toward learning from patient narratives. Students assume a personal responsibility toward learning more about these topics and recognize the importance of their management in clinical contexts.
Discussion: This study will help illustrate what and how students are currently learning about invisible disability to co-create a narrative medicine-informed framework that can be integrated into undergraduate medical curricula to enhance their education on these topics.
Methods: A narrative ethnographic approach was adopted. Five ethnographic observations were conducted for an 11-week, second-year undergraduate medical school course focused on caring for vulnerable patient populations with complex presentations. Twenty second year and third-year students and three course instructors (n=23) participated in semi-structured interviews which were partially and iteratively guided by preceding ethnographic observations and a feminist bioethical lens.
Results: Data are currently being analyzed using a critical narrative analysis (Souto-Manning, 2014). Early findings suggest that invisible disability is not explicitly taught as a concept in medical curricula. Students provide various conceptualizations for invisible disability and medical uncertainty and narrate their educational experiences with curiosity, empathy, and an openness toward learning from patient narratives. Students assume a personal responsibility toward learning more about these topics and recognize the importance of their management in clinical contexts.
Discussion: This study will help illustrate what and how students are currently learning about invisible disability to co-create a narrative medicine-informed framework that can be integrated into undergraduate medical curricula to enhance their education on these topics.
Biography
Téa Christopoulos is a senior PhD candidate and course instructor at the University of Toronto's Faculty of Kinesiology and Joint Centre for Bioethics. Her doctoral research interests include invisible disabilities, medical uncertainty, narrative medicine, and the medical humanities.
COI Disclosure: I do not have an affiliation (financial or otherwise) with any for-profit or not-for-profit organizations
COI Disclosure: I do not have an affiliation (financial or otherwise) with any for-profit or not-for-profit organizations
Dr. Élaina Gauthier-mamaril
University Of Sheffield
Long COVID Crip Doulas: Counter-archiving Disability Culture Through Podcasting
Abstract
Background
Over 2 million people in the UK are currently living with long COVID. This mass disablement is happening in a hostile environment where years of austerity are compounded by major cuts to disability benefits and social support. In the margins, disabled people have been supporting each other forever, offering companionship and guidance to navigate uncertainty, systemic vulnerability, and self-identity. In the tradition of doulas who attend to the transformative process of pregnancy and birth, crip doulas (Park Milbern, cited in Piepzna-Samarasinha, 2017) accompany those who are making the transition to a disabled (or differently disabled) life. Doulas are not usually medically trained, yet they exist within healthcare broadly speaking and exemplify a different kind
of expertise: one that is based in an intimate knowledge of being disabled in biomedical, financial, social, spiritual, and material systems.
My work examines what it means for people living with long COVID in the UK to engage in crip doula relationships using podcasting as a co-creative research method.
Methods
I situate this project within a broader cross-disability
landscape where cripistemologies – knowledge produced based on living as disabled in an ableist world – are anchored in various cultures of chronic illness. In this presentation, I will provide an overview of our current chronic care landscape and cover my use of crip theory and disability justice principles in relation to podcasting.
Results
I will also discuss the importance of paying attention to the histories of HIV doulas and HIV care trajectory when analysing current long COVID doulaships.
Discussion
Finally, I will lay out my plan to develop cripistemologies of chronicity through podcasting as a way of brokering between the discourse of healthcare systems and disabled knowledge..
Over 2 million people in the UK are currently living with long COVID. This mass disablement is happening in a hostile environment where years of austerity are compounded by major cuts to disability benefits and social support. In the margins, disabled people have been supporting each other forever, offering companionship and guidance to navigate uncertainty, systemic vulnerability, and self-identity. In the tradition of doulas who attend to the transformative process of pregnancy and birth, crip doulas (Park Milbern, cited in Piepzna-Samarasinha, 2017) accompany those who are making the transition to a disabled (or differently disabled) life. Doulas are not usually medically trained, yet they exist within healthcare broadly speaking and exemplify a different kind
of expertise: one that is based in an intimate knowledge of being disabled in biomedical, financial, social, spiritual, and material systems.
My work examines what it means for people living with long COVID in the UK to engage in crip doula relationships using podcasting as a co-creative research method.
Methods
I situate this project within a broader cross-disability
landscape where cripistemologies – knowledge produced based on living as disabled in an ableist world – are anchored in various cultures of chronic illness. In this presentation, I will provide an overview of our current chronic care landscape and cover my use of crip theory and disability justice principles in relation to podcasting.
Results
I will also discuss the importance of paying attention to the histories of HIV doulas and HIV care trajectory when analysing current long COVID doulaships.
Discussion
Finally, I will lay out my plan to develop cripistemologies of chronicity through podcasting as a way of brokering between the discourse of healthcare systems and disabled knowledge..
Biography
Élaina Gauthier-Mamaril (she/her) is a disabled philosopher of disability. She holds a PhD in Philosophy from the University of Aberdeen and has worked as an Interdisciplinary Research Fellow at the Centre for Biomedicine, Self and Society (University of Edinburgh) where she produced Massively Disabled: A Long COVID Research Podcast. She is currently part of the Wellcome Anti-ableist Research Culture project (WAARC) at the University of Sheffield.
COI Disclosure: I do not have an affiliation (financial or otherwise) with any for-profit or not-for-profit organizations
COI Disclosure: I do not have an affiliation (financial or otherwise) with any for-profit or not-for-profit organizations
Dr. Katie Hemsworth
Research Associate, Dr. Gilles Arcand Centre For Health Equity
Northern Ontario School Of Medicine (NOSM) University
Situating identities in socially accountable research networks: A parallaxic approach
Abstract
Background:
Social Accountability (SA) has become a foundational framework in medical and health education, yet its relationship to research, and particularly research networks, remains largely under-developed (Kennel et al., 2025). The CREATE Project is a multi-institutional, international research partnership that uses arts integrated research approaches to investigate the transformative potential of socially accountable research (SAR) networks across local and global scales. Drawing on preliminary findings from the CREATE Project, this workshop invites participants of various backgrounds to collectively explore creative approaches that deepen understandings of the dynamic, unfolding relationships between identity, positionality, and situated knowledge in the context of socially accountable research.
Instructional Methods:
Workshop organizers will begin with an overview of the guiding principles and methodologies of the CREATE Project to date. We will introduce and build on the concept of “parallaxic praxis” (Sameshima, Maarhuis, and Wiebe, 2019), a multimodal, arts integrated research approach that embraces the multiplicities of identity, perspective, and place. Through guided group discussion and collaborative art creation (such as drawing, poetry, comics) based on specific themes intended to deepen and extend inquiry, workshop organizers and participants will collaboratively address the question: How do arts-integrated approaches help researchers strengthen individual and collective identities across geographies, cultures, and disciplines for greater impact?
This workshop is open to anyone interested in the potential of arts-integrated approaches (including but not limited to parallaxic praxis) for understanding and practicing socially accountable research across different health-related contexts and networks. No artistic experience required. In joining this workshop, participants are invited to become active contributors to future phases of the CREATE Project.
Social Accountability (SA) has become a foundational framework in medical and health education, yet its relationship to research, and particularly research networks, remains largely under-developed (Kennel et al., 2025). The CREATE Project is a multi-institutional, international research partnership that uses arts integrated research approaches to investigate the transformative potential of socially accountable research (SAR) networks across local and global scales. Drawing on preliminary findings from the CREATE Project, this workshop invites participants of various backgrounds to collectively explore creative approaches that deepen understandings of the dynamic, unfolding relationships between identity, positionality, and situated knowledge in the context of socially accountable research.
Instructional Methods:
Workshop organizers will begin with an overview of the guiding principles and methodologies of the CREATE Project to date. We will introduce and build on the concept of “parallaxic praxis” (Sameshima, Maarhuis, and Wiebe, 2019), a multimodal, arts integrated research approach that embraces the multiplicities of identity, perspective, and place. Through guided group discussion and collaborative art creation (such as drawing, poetry, comics) based on specific themes intended to deepen and extend inquiry, workshop organizers and participants will collaboratively address the question: How do arts-integrated approaches help researchers strengthen individual and collective identities across geographies, cultures, and disciplines for greater impact?
This workshop is open to anyone interested in the potential of arts-integrated approaches (including but not limited to parallaxic praxis) for understanding and practicing socially accountable research across different health-related contexts and networks. No artistic experience required. In joining this workshop, participants are invited to become active contributors to future phases of the CREATE Project.
Biography
Katie Hemsworth is a critical-cultural geographer and currently a research associate at the Dr. Gilles Arcand Centre for Health Equity at NOSM University (Thunder Bay campus, situated on Robinson Superior Treaty territory and the lands of Fort William First Nation).
COI Disclosure: I do not have an affiliation (financial or otherwise) with any for-profit or not-for-profit organizations
COI Disclosure: I do not have an affiliation (financial or otherwise) with any for-profit or not-for-profit organizations
Ms. Talia Katz
Medical Student
University Of Toronto
Making Voice Visible: An Arts-Based Model for Inclusive Disability Care
Abstract
Background: Adults with intellectual and developmental disabilities (IDDs) face persistent barriers to healthcare communication that limit self‑expression, self‑advocacy, and participation in care. These barriers reflect overlapping influences of identity, stigma, and systemic exclusion. Patient‑centred care prioritizes lived experience and mutual understanding. Narrative medicine operationalizes these principles through the arts and humanities, using storytelling to build empathy and connection. Although promising for inclusive care and clinician wellbeing, narrative medicine has rarely been adapted for adults with IDDs.
Purpose: To design, implement, and evaluate an arts‑based narrative medicine workshop for adults with IDDs, and to assess effects on reflective insight, communication, self‑advocacy, and empathy, with implications for health professions education.
Methods: CREATE (Cultivating Reflection, Empathy, and Awareness in Telling Experiences) was co‑developed with Reena, a community organization serving adults with IDDs. 60-minute sessions were facilitated by medical and occupational therapy students and combined guided art making with structured reflection on healthcare experiences. The program was evaluated using a mixed methods design. This included an 8-item pre-post survey (5-point Likert scale) analyzed with Wilcoxon signed-rank tests and post-session focus groups analyzed thematically within a framework aligned with program objectives.
Results: 61 participants completed surveys and 12 joined focus groups. Significant improvements were observed across all 8 survey items (p < 0.001) with large effect sizes (r = 0.84 to 0.99). Qualitative themes showed that arts-based storytelling externalized emotions and experiences, clarified care needs, increased confidence to initiate healthcare conversations, and fostered more empathetic exchanges with caregivers and clinicians.
Discussion: CREATE amplifies the voices of adults with IDDs, affirms identity through creative expression, and strengthens communication among patients, caregivers, and providers. Its interprofessional, student-led, community-partnered model provides a scalable and cost-effective approach to inclusive care and reflective practice. Future work will focus on broader implementation across clinical, educational, and community settings.
Purpose: To design, implement, and evaluate an arts‑based narrative medicine workshop for adults with IDDs, and to assess effects on reflective insight, communication, self‑advocacy, and empathy, with implications for health professions education.
Methods: CREATE (Cultivating Reflection, Empathy, and Awareness in Telling Experiences) was co‑developed with Reena, a community organization serving adults with IDDs. 60-minute sessions were facilitated by medical and occupational therapy students and combined guided art making with structured reflection on healthcare experiences. The program was evaluated using a mixed methods design. This included an 8-item pre-post survey (5-point Likert scale) analyzed with Wilcoxon signed-rank tests and post-session focus groups analyzed thematically within a framework aligned with program objectives.
Results: 61 participants completed surveys and 12 joined focus groups. Significant improvements were observed across all 8 survey items (p < 0.001) with large effect sizes (r = 0.84 to 0.99). Qualitative themes showed that arts-based storytelling externalized emotions and experiences, clarified care needs, increased confidence to initiate healthcare conversations, and fostered more empathetic exchanges with caregivers and clinicians.
Discussion: CREATE amplifies the voices of adults with IDDs, affirms identity through creative expression, and strengthens communication among patients, caregivers, and providers. Its interprofessional, student-led, community-partnered model provides a scalable and cost-effective approach to inclusive care and reflective practice. Future work will focus on broader implementation across clinical, educational, and community settings.
Biography
Talia Katz is a third-year medical student at the University of Toronto. Her work integrates the arts and humanities into health professions education to strengthen patient voice, community engagement, and interprofessional collaboration. She has led and contributed to initiatives supporting adults with intellectual and developmental disabilities, with an emphasis on advancing equity in care. Talia currently serves as Vice President of the Education Subcommittee of the Interprofessional Health Students’ Association and is the 2025 recipient of the Art in Medicine Award.
COI Disclosure: I do not have an affiliation (financial or otherwise) with any for-profit or not-for-profit organizations
COI Disclosure: I do not have an affiliation (financial or otherwise) with any for-profit or not-for-profit organizations
Ms. Jenna Kedy
Patient Voice Member
Canadian Medical Association
Chronically Iconic: How Disability Shaped My Voice, Not My Limits
Abstract
When I was diagnosed with juvenile idiopathic arthritis and fibromyalgia as a kid, I thought my story was being written for me in medical charts, appointment notes, and “how are your pain levels today?” checklists. What I didn’t realize was that disability would become the plot twist that made me pick up the pen and write my own story instead. Chronically Iconic: How Disability Shaped My Voice, Not My Limits is a fast-paced, heart-filled snapshot of what happens when illness stops being your villain and becomes your microphone. Through twenty slides and a whole lot of real talk, I’ll share how navigating the healthcare system as a young, disabled woman turned frustration into fuel and how I went from patient to partner, from quiet to keynote. Expect a mix of humor, honesty, and maybe a little glitter as I explore how disability reshaped my identity, my confidence, and my purpose. You’ll hear about the awkward doctor appointments, the invisible barriers, and the beautiful moments where self-advocacy became survival. It’s about finding joy in the chaos, courage in the pain, and community in the spaces that weren’t designed for us yet because disability doesn’t make you less capable; it just gives you a louder story to tell and mine is still being written, one sparkly, resilient chapter at a time.
Biography
Jenna Kedy (she/her) is a 21-year-old youth advocate, storyteller, and Family Studies student from Lakeside, Nova Scotia. Living with juvenile idiopathic arthritis and fibromyalgia, Jenna transforms her lived experience into action — championing accessibility, inclusion, and meaningful youth engagement in healthcare across Canada. She’s a member of the Canadian Medical Association’s Patient Voice, a representative for the Eureka Fellowship, and a Youth Advisory Council member with IWK Health. Through roles with Take a Pain Check and the Young Canadians Roundtable on Health, she helps co-create youth-friendly systems that center voice, value, and representation. Beyond advocacy, Jenna is a Girl Guides leader, volunteer with Club Inclusion, and community organizer known for her glittery enthusiasm and heart-led leadership. She’s also the creator of projects like “Hope by Heart: Storytelling Collective” and “Crown Yourself: A Confidence Campaign.” Whether on stage or in community spaces, Jenna brings warmth, humor, and hope — reminding everyone that lived experience isn’t extra credit; it’s expertise.
COI Disclosure: I do not have an affiliation (financial or otherwise) with any for-profit or not-for-profit organizations
COI Disclosure: I do not have an affiliation (financial or otherwise) with any for-profit or not-for-profit organizations
Dr. Martina Kelly
University Of Calgary
Stitching stories: finding meaning in teaching through quilting
Abstract
Introduction: Recruitment and retention of clinical preceptors remain a pressing challenge in health professions education. Increasing administrative demands, competing clinical responsibilities, and the lower prestige of teaching relative to research threaten the time, motivation, and professional identity of clinician educators. This study explored quilt-making as an arts-based approach to support reflection, meaning-making, and build community among clinical educators.
Methods: 7 workshops, ranging between 60-90 minutes, were offered at 2 different university faculty development programs (5 workshops) and at two medical education conferences (2 workshops). Participants included clinicians from different disciplines, with varying levels of experience. Workshops combined guided writing prompts, creation of individual quilt blocks representing meaningful teaching moments, and assembly of a collective quilt. Data collection included post-workshop evaluations comprising a mix of Likert and open-ended questions, and 8 semi-structured interviews with volunteer participants soon after workshops. Evaluations and interviews were analyzed using descriptive statistics and thematic analysis.
Results: Of 140 attendees, 103 returned evaluations. Participants reported high engagement in the workshop, particularly appreciating the opportunity to be creative. Participants valued reflecting on meaningful teaching moments, expressing these experiences visually, and sharing insights with peers. The collaborative quilting process fostered a sense of community and reinforced professional identity. A composite quilt has been made from participants’ quilting blocks and will be displayed during this presentation.
Discussion: Quilting offers a novel, engaging platform for reflective practice in health professions education. The approach supports both individual insight and collective connection, enhancing motivation, meaning, and professional identity among clinical educators. Future directions include virtual adaptations, expanded interdisciplinary participation, and research on the long-term impact of arts-based reflective practices on faculty engagement and retention.
Methods: 7 workshops, ranging between 60-90 minutes, were offered at 2 different university faculty development programs (5 workshops) and at two medical education conferences (2 workshops). Participants included clinicians from different disciplines, with varying levels of experience. Workshops combined guided writing prompts, creation of individual quilt blocks representing meaningful teaching moments, and assembly of a collective quilt. Data collection included post-workshop evaluations comprising a mix of Likert and open-ended questions, and 8 semi-structured interviews with volunteer participants soon after workshops. Evaluations and interviews were analyzed using descriptive statistics and thematic analysis.
Results: Of 140 attendees, 103 returned evaluations. Participants reported high engagement in the workshop, particularly appreciating the opportunity to be creative. Participants valued reflecting on meaningful teaching moments, expressing these experiences visually, and sharing insights with peers. The collaborative quilting process fostered a sense of community and reinforced professional identity. A composite quilt has been made from participants’ quilting blocks and will be displayed during this presentation.
Discussion: Quilting offers a novel, engaging platform for reflective practice in health professions education. The approach supports both individual insight and collective connection, enhancing motivation, meaning, and professional identity among clinical educators. Future directions include virtual adaptations, expanded interdisciplinary participation, and research on the long-term impact of arts-based reflective practices on faculty engagement and retention.
Biography
Martina Kelly is a Family Physician with an interest in Medical Education
COI Disclosure: Any direct financial relationships including receipt of honoraria, gifts, in-kind compensation, etc: SSHRC, CIHR
COI Disclosure: Any direct financial relationships including receipt of honoraria, gifts, in-kind compensation, etc: SSHRC, CIHR